Blog update June 28-06-24 Friday

 Hello everyone and welcome , Sadly its isnt a good news Blog and am not looking forward to writing it to be Honest , but I did promise a Warts and All Policy so thats what we have appointment 24 of 2024 .

My next planned appointment was 5 th July 24 , but on Wednesday of this week I received a call from Mr Hughes secretary say because of something he was doing next week could I attend earlier and do this Friday 28th ? I said yes and was given 11-55 am slot . On Thursday while out at Bowls I received another call from Aden at Christies asking me the same question ? I informed him about the cal from the day before and that I was already booked for 11-55 am , he then informed me that I wasnt on the system and offered me other times ? , I rejected the offer saying Mr Hughes Secretary had booked me in and because a third person was going with me it was not convenient to change !! so he agreed to 11-55 .                        Later when I got home I felt concerned about the Calls and rang Bev to confirm the appointment and explained the second call   from Aden ,she explained they were moving lots of appointments and it was a little confusing but I would be seen "whatever time I turned up " ?  ,really ? 

So on Friday morning I went to collect my friend Mark Bottomley who had very kindly offered to accompany me for the day , and off we went to the Christies , arrived in plenty of time and made our way to dept 22 check in , where I showed my paperwork and explained I had requested to attend a week early the receptionist also gave the reply it doesnt really matter what time you turn up they will see you ?

So off we went to waiting area 1 and waited and watched , we saw my Oncologist Mr Hughes walk past a few times and it was its usual busy area , 11-55 came and went and we waited and waited then about 12-30 I said to the Nurse where where am I on your   List , eventually about 1 pm we were called to go and wait in a Examination room , and again wait , eventually a Lady Doctor   came into the room and introduced herself  Dr Garcez   , I replied hello but where is Mr Hughes  as its my results I had expected to be seeing  Him ? , she explained he was elsewhere and she would be looking after me today ? ( i wasnt happy but what can i do) she then started to talk and I interrupted her to explain my Thomas Trumps Cancer Cap   and explain I can only wear it if I am Cancer Free so can I Put it On ? , she was amused at the Cap then said NO !! , so I was immediately deflated and asked why not ? 

Dr Garcez explained my second PET Scan showed that the Throat Cancer had gone , and if they had just been looking at the PET Scan results they would be happy , However the second lot of BIOPSIES that had been taken showed P16 Cancer Cells in Left and Right Lymph Nodes !! ( remember first biopsies taken weeks ago somehow got lost !! )                                                                                            I asked if that was the same type as the Throat Cancer and she said yes , and although it had been targeted by the Radiotherapy at the same time as my throat some still remained and that she wanted to refer me to Manchester Royal Infirmary for Surgery !!!!                                                    Mark and I then asked several really good questions   many of which she replied "I    dont know you will need to talk to the Surgeon ? , then I explained that my situation had been going on 8 months and it was very stressful     for me all the waiting and wondering and not being able to plan anything and this was in fact appointment number 24 of this year which did shock her a little , So how is this now going to take to get sorted out i asked ?  she said she hope I would see someone in a matter of weeks                                                                                                                    Then I asked why cant we wait and do another test ? She replied that waiting was not a good Idea because the Cancer could get more established     and more difficult to treat ,  so then I said "        " so the weeks we wasted due to the Lost Biopsies   were very important  ? "  she reluctantly relied Yes !!

So I am now once again waiting for another letter for another appointment at Another Hospital  and More New Doctors , to be Honest I am totally Pissed off and frustrated with some of  things that have gone on with my treatment . Mark Bottomley was a brilliant help today in both Company and Constructive comments during the appointment , thank you matey  

On the way Out Mr Hughes actually came over to speak to me and apologised for not seeing me and about the results , I did respond saying I was not Impressed and raised a couple of points with him and showed him a Letter I had received from Fairfield Hospital  and its content which he was very surprised at to say the Least , Mr Hughes said He would chase things up !! yeah right , believe it when I see it

So my friends Thomas is not in a good place at the Moment ,last night I made some phone calls to certain Family and Friends which helped me a lot but then in the Middle of talking to someone on the phone , my Son Patrick his partner Kelly and Granddaughter Teagan turned up at my house as a Surprise and me and Patrick had a big Dad and Lad Hug , we talked for few hours about all sorts stuff which was a great distraction and great help even though they ate lots of biscuits ha ha  and this was after him having a Long day at work ,Thank you all 💜                                                                                                                                                                                                                          It doesnt look like I will be ringing that bell or wearing my Cap for a long time but I will try and remain Positive though at the moment I do find it difficult and I will keep you updated when I know anything , my love to you all   thanks for your continued support                                                                                                                                                                                                                    God Bless stay safe x