Posts

Blog update June 28-06-24 Friday

 Hello everyone and welcome , Sadly its isnt a good news Blog and am not looking forward to writing it to be Honest , but I did promise a Warts and All Policy so thats what we have appointment 24 of 2024 . My next planned appointment was 5 th July 24 , but on Wednesday of this week I received a call from Mr Hughes secretary say because of something he was doing next week could I attend earlier and do this Friday 28th ? I said yes and was given 11-55 am slot . On Thursday while out at Bowls I received another call from Aden at Christies asking me the same question ? I informed him about the cal from the day before and that I was already booked for 11-55 am , he then informed me that I wasnt on the system and offered me other times ? , I rejected the offer saying Mr Hughes Secretary had booked me in and because a third person was going with me it was not convenient to change !! so he agreed to 11-55 .                        ...

Blog Update June 17-6-24 Monday

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 Well hello everyone and welcome  ,Whats  happened since 29th May update ? not a lot really , I managed to complete the Part 2 of the Earad Clinical Review tests after my ear issue cleared up , so that is done and dusted and out of the way . I did have another Appointment at the Fairfield Hospital on the 11th June , but that was a farce ,total waste of time so wont bother with it any Further  So today was my 22 nd Hospital / Clinic Visit of 2024 !! thats quite a lot isnt it , and it was back to the Christie Hospital ,Nuclear Medicine Outpatients dept for another Full Body PET Scan .         Nice to be welcomed with Hello again how are you ? from more or less the same staff as my Last one , Lisa and a Young Student Nurse Daisy took me into the Lead Lined Examination and Lisa went through the procedure and tick sheet with me and there were no issues arising from that .                      ...

Blog update 29-5-24 Thursday

 Well good afternoon everyone and thanks for looking in and commenting on the Blog ,much appreciated I assure you . Well as I said in my last Blog anything can change and it has done the reasoning behind it I can only guess ? So after having my Biopsies on the 23rd May and ringing  up to get a sooner date for my results I was a Happy Chappy !! 😄                                                                                                                                           Then late on the Friday the 24th I receive a first class Letter from Christies  , On opening I note the letter is dated the 17th May (  yes folk...

Blog update Thursday 23-5-24

 Hello and good afternoon everyone , sorry ,I appreciate its been a while since I updated the Blog on  29   th April  but to be honest its been a bit of a Mess .Are you sitting Comfortably 😁  After having the last lot of Tests I returned  to Christies with my friend Bev Heath on the 10 th May to find out the results of The Biopsies from my Oncologist Mr Hughes , after a brief chat he went on to the Computer to get my File details , when he looked at the screen he said was looking good because       "They didnt need to do Biopsies ? " ,  when I informed him that they HAD put Pins in my neck and were looking for a 9 mm Lymph Node !!!  , his face changed , saying there is nothing on the System  ?? That may be I replied but I can assure you that I watched a Pin inside my Neck on the Screen and listened to them chat about where to go !! .He said that he had to go and make some phone calls          ...

Blog update 29-4-24

 Hello everyone and yes I am still surviving struggling to put weight back on , still suffering from the Lack of Smell and the Dry mouth which doesnt help really  but have been told to be a Patient Patient , yeah right !! Last week I was given the all clear at North Manchester General by the Dietitian people who assure me I am doing well on getting things working again , and the Head Neck and Throat people who asked me questions and did some tests and checks and said they are Happy with my progress and to stop beating myself up about things that are normal after Radiotherapy . O.K I will !! So today it was back to Christies  for planned X Rays , Ultra Sound and Biopsies on the Lymph Nodes that had shown up on the PET Scan last time  So check in at Dept 2 went o.k didnt wait long and was taken to X Ray which was pretty routine really . The next Part Ultra Sound a lovely Lady by the name of Michelle called my name and off we went to a Room with a Scanner and a bed and ...

Blog Update Saturday 6-4-24

 Hello everyone , very sorry I am a day late but it has taken me over 24 hours to come to terms with everything and be able to write this Blog , and before I do start I have to say and not be ashamed that I  have  shed a few tears today , Tears of Relief ,Tears of Joy and Tears of reading and replying to every message I have received in the last 36 hours , Humble and Honoured I have to say ,Thank You all so much 💛  On the 7th of September 2023 I noticed quite a big lump on the right hand side of my Neck had developed overnight ! obviously concerned I rang my Doctors for an Appointment , non were available for 3 weeks ! so I decided to take myself down to North Manchester General Hospital A & E  Which isnt far away from home . This turned out to be one of the Best Decisions I have ever made and the Start of an incredible Journey for me . A journey that in a Matter of weeks led to X rays , Ultra Sound Scans , MRI scans ,meeting 2 great Consultants and Nursing...

Blog Update Tuesday 26-3-24

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 Well good afternoon Friends , its been a long time since my Last update on the 19th Jan , but to be honest not a lot has changed apart from me getting more and more Frustrated with my Lack of Progress , which has affected me Mentally and Physically , I still have no sense of Taste or Smell and because my mouths Saliva Ducts arent functioning yet I am having big issues with a Dry Mouth , leading to problems eating food that I should be eating to get my weight back on but my Mouth is rejecting certain foods and they are constantly changing .I have sought help and advice but that wasnt easy ,I have been in my Black Hole since treatment finished , I have heard nothing from Anyone at Christies and ended up ringing North Manchester General people for help and seeing my own Doctor , the Symptoms I am having are common with Radiotherapy which I had so its Patience and time , I have tried various Prescriptions for my mouth but nothing really solves it but 1 does help a little at night , bu...